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Health Charities

Macmillan Cancer

Macmillan Cancer Support
One in three of us will get cancer and it’s the toughest thing most of us will ever face. If you’ve been diagnosed with cancer, or a loved one has, you’ll want a team of people in your corner supporting you every step of the way. Macmillan provide practical, medical and financial support and push for better cancer care.

Marie Curie Cancer Care

Marie Curie Cancer Care is a UK charity dedicated to the care of people with terminal cancer and other illnesses. Over the financial year 2010/11, we reached a total of 31,799 patients

Youth Health Talk

YouthHealthTalk
Youthhealthtalk enables young people, their family and friends, and professionals such as doctors and teachers to understand young people's experiences of health, illness and life in general. The website feature real-life accounts of issues such as effect on work and education, social life and relationships, consulting health professionals and treatment.

Sharing your records

Information about you is used in a number of ways by the NHS and social care services to support your personal care and to improve health and social care services for everyone.

The Health and Social Care Information Centre (HSCIC) is the national NHS organisation with a legal responsibility to collect data as people make use of NHS and social care services.

The data is used locally and nationally to help with planning, managing your care, supporting research into new treatments, identifying trends and issues and so forth, and is used to try to make services better for all.

You can, however, choose not to have information about you shared or used for any purpose beyond providing your own treatment or care.

Your right to opt out

You can choose not to have anything that could identify you shared beyond your GP practice. You can also choose for the HSCIC not to share information it collects from health providers any further.

If you have previously told your GP practice that you don't want the HSCIC to share your personal confidential information for purposes other than your own care and treatment, your opt-out will have been implemented by the HSCIC from April 29 2016. It will remain in place unless you change it.

Simply contact your GP either to register an opt-out or end an opt-out you have already registered and they will update your medical record. Your GP practice will also be able to confirm whether or not you have registered an opt-out in the past.

You can find more information on the HSCIC website:
• See how the HSCIC uses your information
• Read about how the HSCIC handles your information and your choices
• Find more about how the HSCIC manages your opt-out, including situations where the opt-out might not apply.

 
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